The last blog got me a lot of negative comments and I just needed to say a few things to those who think I’m a “Mean” or “Bad” or “Selfish” person. What I do as a therapist IS a reflection of who I am out of work. I treat each of my patients with respect and caring as I would my own family. I never tell them anything I wouldn’t tell a friend or family member and never act to demean them in any form. In my last post I talked about telling them about who I was and how my disease effects me, which they don’t see. And yes maybe that is wrong when in a professional role. What I neglected to say is that by the time I had my little “blurt” I was very close to these people. How many health care providers do you have home numbers for? How many, if any, can you call when you need someone to talk to? I will venture to guess not many. I have put myself out there to help my patients just like I would hope others do when my own family needs help. But we all know that not all providers are empathetic and most could care less about us after we walk out of their office. There are those, like me, who do care and we get persecuted for caring. These patients I work with I care deeply about because that is what we should all be doing as HUMANS is CARING. The other point I want to make is when I tell patients about my health I’m telling them as a friend not a therapist. I would never cross that boundary and only some of them get this “treatment”. My therapist “hat” is off and my “human” hat is on when my blurting occurs. I have found, especially writing this blog, that there are people in this world who want help but don’t like the help they get. Then there are others who want help and don’t know how to go about getting it. We all talk about how bad health care providers are, but have you ever thanked the ones who take the time to listen to you, are sympathetic and feel empathy towards your situation? I can’t count the thanks I have gotten from patients for listening to them and feeling their pain as if it were mine. Yep I have gotten booted to the door and told to never come back a few times but it wasn’t because of who I am or what I said, but because of who they are. They didn’t want the help I could give. They would rather lie in their own misery and that’s just fine by me. You can not help those who don’t want to be helped! And no they never knew about ME! So for the people who read my blog and do not agree with what I say then please feel free to unfollow me, I won’t be offended. My intentions in writing this blog was to document my life as an individual with AS not as a leader who’s words should be followed as if they were the gospel truth. My journey on the AS train is not one all should follow because we are all different. What works for me isn’t necessarily going to work for everyone. I live in a world of my own making. I listen to others opinions and then take some of what they think, if I agree, and form my own opinions. We should all do this and not condemn others for what “they” feel and think. We are all like molecules each different from the other, no two molecules are the same so how can what I do and say be judged as not “right”? We are all perfect in our skins no matter what we do, think or say! .