Ankylosing spondylitis

Getting back to LIFE….

lifegoeson“That survival instinct, that will to live, that need to get back to life again, is more powerful than any consideration of taste, decency, politeness, manners, civility. Anything. It’s such a powerful force.”   Danny Boyle

For the next nine years life seemed to get back to normal. I continued to take my anti-inflammatory for the first 4 years after that I kind of forgot to take it. The meds along with my “waterbed” seemed to have decreased my pain levels and I was able to sleep in a bed without any discomfort.

So here is my theory on the water-bed. By putting the foam on it I essentially created a large heating pad, because I never turned the water heater off. By sleeping on it my body was able to mold into the mattress and the heat kept my muscles loosened. This is what I think helped me to sleep better.  I would wake fully rested and on very rare occasions would I have some stiffness.

I had little if any discomfort during this time and my body was feeling it’s normal self. I gained some weight during this time as I was continuing my studies and not exercising properly, but don’t think the extra weight did much harm. But other things were beginning to happen.

In 1999, on a school trip with my son’s class to Washington DC, Baltimore and New York, I started getting really nauseous and my stomach was hurting constantly. The cramping was so bad that while walking and seeing the sights I was doubling over with pain. While in Washington DC, visiting the Smithsonian, the pain was so bad I passed out. One of the other parents helped me to get a cab and I made my way back to the hotel. I got to the room and lied down until everyone returned. The pained never ceased but got worse. My “roommate” said “this is not good you need to go to the ER.”

Off we went to the ER and after being seen I was given a diagnosis of “irritable bowel.” The rest of the trip was miserable, I didn’t eat much and stayed in the hotel rooms most of the time. Since that day I really don’t like vacations because I figured the foods you eat on vacation makes you sick!

Over the next couple of years I got this “irritable bowel” a few times and always attributed it to something I ate. My back was doing fine, but on occasions I continued have some minor stiffness but it really didn’t bother me like it did in the beginning.

Next week…. The Boy

Categories: Ankylosing spondylitis, back pain

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