Ankylosing spondylitis

How to be sick….

lifechronicI have figured out how to be sick…. if it isn’t one thing it’s another. Just when I think I have gotten to the top of the ridge my body slams me down to the cliff, and leaves me hanging there without one ounce of sympathy. I have gone through the last weeks or so in a fog, not knowing what I am thinking, but knowing I hurt… why can’t I make being sick popular? This way I won’t feel so BAD!

It has been a while since I have written an update on my oh so fantastic life…. I don’t even know where to begin really, but today is the first day in over a month that I haven’t had a headache, backache, sacrum pain and just that overall crappy feeling. On the 8th I ended up in the ER with a headache so bad that I couldn’t even see. I knew it was bad when it woke me up out of a dead sleep and made me run to meet the porcelain god! I have had headaches before but nothing like this. How does one put up with this pain? In the ER, after the CT scan, I was told by the nice physicians assistant (PA) that nothing was wrong with me. The CT scan showed some lacunar infarct…. wait what did you say? OK, I’m a speech therapist, I know what a lacunar infarct is….

“Excuse me, lacunar infarcts are usually attributed to diabetes and hypertension, I don’t have any of those” and he responds “Well we see this sometimes, you’ll have to go and see your doctor”. Really now! Once he figured out I knew more than he did, he was at loss for words…. what an idiot.. Probably not an idiot but that IS what I was thinking.

Some good things…. UC, walla, nothing, nada like it never existed. Has been nice to enjoy some foods I haven’t eaten in a while.

Some not good things, besides the headaches, OF COURSE, my muscles are tight and don’t want to move. AS at its finest I might say. Even getting out of a chair is rough. And last but not least, my husband… I know God gave me Patients so that I might learn Patience but my husband, I don’t know what I’m learning but I sure got tired of hearing “My life is slipping away because you can’t do anything anymore”. Well his sister had a talk with him and since last weekend I have gotten dinner every night and he has cleaned up the house, brought in pellets for the stove and continues to wash the dishes… Karma works in mysterious ways…

Please believe me I really don’t want to go on a whine fest, but I would rather have my aches and body pains over headaches any day. Whew…

1 reply »

  1. Hi Joyce, thanks for liking my post. We have something in common but unlike you I only wrote about it once. Love your site and will certainly be coming back. I hope you don’t mind if I give you a link to my (so-far) one and only post on our Mutual Friend –

    It says pretty much what I wanted to say, which is: A Big Hat Tip to you for your courage and your good humour. It does help, and it does make a difference to people like me lucky enough to stumble upon your blog.

    Love S

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