Living with Ankylosing Spondylitis can be difficult but I manage one day at a time!
This year I’m taking a step back and am going to focus on the good things, which there are some, about AS. In the Year of the Horse, Feb 1, 2014 – January 31, 2015, there will be health and prosperity. So I’m going to focus on the HEALTH aspect and go from there.
First off, a little update….. I do still have AS, blood clots, trouble walking, fatigue when I do to much and stiffness but…. I’m working two times a week, working out using my new wii fit, doing pool therapy, my gut is almost normal, taking less pain killers and finally got my LTD monies. Looks like 2014 is going to be much better than 2013.
in not only one category but two: Best in Show: Community/Forum and Best Kept Secret. Just being nominated meant a lot to me because I don’t think of myself as an activist. I’m just a person who has a health challenge who has no other way to deal than to write, so these nomination mean more than I let on. It is kind of like being nominated for a Grammy or Emmy, just the nomination is clarification enough to make me realize that I am doing what I am supposed to! Thank you again for this honor.
Another cool thing happened, I was interviewed by one of Dr. Sanjay Gupta‘s staff for a piece on AS for the website Health Matters. Again I was truly honored that they wanted to talk to me and was pleasantly surprised by the support I got when the article came out in January. The piece was well written and I guess shedding more light and awareness towards the AS cause IS what it is all about. If you’d like to read the article click the everyday Health logo.
January was just filled with wonder. My daughter gave me a granddaughter, my first, and because I wasn’t working I was able to go down and be with her after the birth. She is such a joy and I look forward to many years seeing her grow up.
Towards the end of January I was a guest “chatter” on the International Foundations Autoimmune Arthritis FB page. This was a new experience for me but I really enjoyed sharing my story and spreading more awareness for AS. If you don’t know about IFAA please visit their site. These people work tirelessly to bring awareness to ALL autoimmune diseases not just AS. IFAA is the official hosts and coordinators of WAAD14. They will be looking for some volunteers to sign up to help this year with their annual World Autoimmune Arthritis Day May 20, 2014.
Finally, it is that time again and Walk Your AS Off 2014 is gearing up and this year were going to MARS. I know it seems unrealistic but so far this year, and we haven’t even started, we have more teams signed up than we had all of last year and we made it to the MOON! So yes I think we can make it to MARS. If you would like to participate in WYASO 2014 there are many teams who would love to have you, even ME! Go to WYASO website and under “Meet our teams” there is a drop down menu, pick 2014 and then choose a team you would like to join. Once you choose sign up. You don’t have to live near anyone, you just do your own thing. Or if you know a lot of other people form your own team. All the information is on the website or feel free to email me. This year I have a FB page for team “A Bunch of AS Kickers” so feel free to stop by and give me a holler. If I can do this with all my walking issues then you can do it to, just give it a try. Every step counts!
This year I AM going to make a lot of changes in my life and thinking positive will be difficulty but I know I can do this. I am going to focus on living not my illness. I will be the writer/director/actor in my life’s saga and I am choosing to live it in the best way I can!
A detemined Spondy out to raise awareness for Ankylosing Spondylitis!
Learning to deal with Ankylosing Spondylitis (AS).
My new life with Ankylosing Spondylitis.
my leap from chronic pain darkness
I'm a journalist and author of 'Mostly Cloudy, With Some Bright Spells'. I live beside the seaside with some hideous illnesses (ulcerative colitis, ankylosing spondylitis, scoliosis and Crohn's disease) along with my French husband and our stupid cat. Despite being in pain 24/7 I'm a relatively cheerful, mentalistic sort.
Bridging the gap between life and life everlasting
A place for low carb and Low Starch recipes, the occasional thought & kicking A.S
The Official Blog of the International Foundation for Autoimmune Arthritis